But they're wrong, because I do.
Instead of missing what was, you miss what could have been. And at times, it tears your heart just as much. I've lost loved ones... I spoke of many of them in my recent post about grief. But the type of grief I'm feeling tonight is that first type... the loss of someone you never really got a chance to know.
I'm lucky to be a member of the Reece's Rainbow community, where children and adults with special needs are valued and treasured for the people they are. Where people have not only children, but brothers and sisters, nieces and nephews, uncles and aunts, friends... with special needs... with down syndrome. Last month I was priviledged to be present at our local Buddy Walk, a one-of-a-kind event raising awareness and pooling together resources for the Down Syndrome community.
| A group of adults and kids dancing on stage at the buddy walk. |
I read about these beloved family members and friends, and how their genuine love and care for others lasts their whole lives long. They rarely become jaded and angry like so many of the rest of us do... their smiling eyes bring joy to their families for years on end. Sure, there are challenges for a person with down syndrome as they grow older... challenges we all face, and challenges related to down syndrome... but the most important thing is that they live. And I don't just mean that they inhale and exhale like we all do. Look at those three dancing on that stage. They're really living! How many people do you know who would get up on a stage in at an event with thousands of people and sing and dance with all they've got?
Later, in fact, more people joined these three on stage, and a crowd formed to watch them.
| Thick enough with people that I could barely see them |
What a wonderful day, what a wonderful event, for special people.
And yet... as I behold this joy and learn the stories of more and more adults with down syndrome... my thoughts always return to the one I'm missing. The one who never got to go to a buddy walk and dance on the stage (although I'm sure if you ask my mom she'll let you know he was an entertainer in his own right)... the one I only have this one picture of to share (there are a few more but none uploaded to my computer, and there will never be enough...)
My Uncle Tony... how I miss him... his life ended far too soon forty years ago... when he was only ten years old.
I miss what could have been. I often think what it would've been like to grow up with him around. He would have been around 27 when I was born. I bet we would've been friends. No, I know we would've.
I remember being about four years old... I used to wake up early every morning when my mom got up to go to work... hours before my dad would wake up... and some mornings I would just beg, and beg, and beg to go to work with my mom. And some mornings, she would give me a sippy cup full of my favorite juice and turn on wacky races and kiss my goodbye. Other mornings, she would give in, get me dressed, and take me with her to the four-story building downtown where she worked.
My mom is a computer programmer. She uses scores of programs that are referred to by acronyms... ABDs and CBAs and TYFs and DHCs and I completely made all those up because for the life of me I could never remember, let alone work on all those things. As a child, I thought it was so funny, though, because when my mom's coworker, Dan, would come into her office to discuss an issue with her, they would stand there and discuss the ABD or whatever it was that day, and I would say, "Silly Dan, it's the ABC's! Don't you know your alphabet?" And bless his heart, Dan would humor me and pretend to sing the alphabet song and mess it up on purpose. So I'd spend hours and hours on end with reams of old printer paper, my mom's highlighters, and a copious amount of staples, making him ABC books, 'so he could learn his ABC's'. Then I'd hand them to him proudly and tell him to practice. It's a childhood memory I recall fondly.
There was another man at my mom's office who was blind, and I just loved him because of the beautiful dalmatian he got to bring to work with him every day... but never once did I care that he was blind... because when you're four years old, people are people, not labels. I imagine, if my Uncle Tony had lived long enough for me to meet him, I would've talked to him and treated him just like I did anyone else... and if I happened to discover, like silly Dan, that there was something he didn't know... I like to think we would have learned together. I like to think I would've made him a 'book' of old printer paper and staples too. And I just know he would have been delighted to have it... whatever ridiculous four-year-old creation it ended up being.
Yep. We would've been friends. I would've shared my M&Ms with him, even the blue ones (because it was him I thought of when they first came out... and they were my favorite, I never shared my blue ones! Don't you know that blue things just taste better?), we would've sang songs and rhymes together... my mom's family can throw some lively parties but I just know if he were here he would be the life of every single one.
We would've been friends.
Some days, even as I smile to see the continuing joy that people with down syndrome so often carry throughout their lives, I feel sad because I miss someone I never met... I miss what could have been.
But on those days...
I remind myself that we'll just have that much more catching up to do in Heaven.
And there will be M&Ms... all the colors of Reece's Rainbow.






















































